Stakeholder engagement—the practice of working with users of your research to ensure research relevance and usefulness.

Articles

• Boivin, A., Richards, T., Forsythe, L., Grégoire, A., L’Espérance, A., Abelson, J., & Carman, K. L. (2018). Evaluating patient and public involvement in research. BMJ, 363. https://doi.org/10.1136/bmj.k5147

• Bowen, D., Hyams, T., Goodman, M., West, K., HarrisWai, J., & Yu, J. (2017). Systematic review of quantitative measures of stakeholder engagement. Clinical and Translational Science, 10(5), 314–336. https://doi.org/10.1111/cts.12474

• Carman, K. L., Dardess, P., Maurer, M., Sofaer, S., Adams, K., Bechtel, C., & Sweeney, J. (2013). Patient and family engagement: A framework for understanding the elements and developing interventions and policies. Health Affairs, 32(2). https://doi.org/10.1377/hlthaff.2012.1133

• Elsabbagh, M., Yusuf, A., Prasanna, S., Shikako-Thomas, K., Ruff, C. A., & Fehlings, M. G. (2014). Community engagement and knowledge translation: Progress and challenge in autism research. Autism, 18(7), 771–781. https://doi.org/10.1177/1362361314546561

• Henderson, J., Brownlie, E., Rosenkranz, S., Chaim, G., & Beitchman, J. (2013). Integrated knowledge translation and grant development: Addressing the research practice gap through stakeholder-informed research. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 22(4), 268–274. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3825466/

• Keown, K., Eerd, D. V., & Irvin, E. (2008). Stakeholder engagement opportunities in systematic reviews: Knowledge transfer for policy and practice. Journal of Continuing Education in the Health Professions, 28(2), 67–72. https://doi.org/10.1002/chp.159

• Lane, J. P., & Rogers, J. D. (2011). Knowledge value mapping of national organizations: A knowledge translation strategy to efficiently communicate research-based knowledge to multiple stakeholder audiences. FOCUS Technical Brief, 32. Austin, TX: Southwest Educational Development Laboratory, National Center for the Dissemination of Disability Research. http://www.sedl.org/pubs/catalog/items/dis145.html

Tools

• The Center on Knowledge Translation for Disability and Rehabilitation Research’s (KTDRR’s) focused on “Engaging Ways to Engage Stakeholders”—The conference archive includes tools for engaging stakeholders in disability research and conference presentations via YouTube. https://ktdrr.org/conference2018/expo/conf_materials.html

• The Partnership Handbook (Frank, F., & Smith, A—Human Resources Development Canada)—This guidebook is intended for organizations to learn more about the benefits of and steps toward forming and strengthening community-based partnerships. Content is organized into six sections, which share best practices for community and stakeholder engagement while offering points to consider for readers as they apply to their own projects and organizations. The authors offer tools useful to stages in the process while also discussing essential ideas and themes related to engagement. http://publications.gc.ca/collections/Collection/MP43-373-1-2000E.pdf

• Principles of Community Engagement (National Institutes of Health)—This document outlines principles of engaging community members as partners in research projects. It includes chapters summarizing findings from multidisciplinary research literature regarding community engagement, highlights nine principles for organizations to consider in planning initiatives, and offers practical case study examples. In addition, tools and suggestions are included for leveraging social media, program evaluation, and organizational support. https://www.atsdr.cdc.gov/communityengagement/pdf/PCE_Report_508_FINAL.pdf

• Stakeholder Forum Participant Survey (Rehabilitation Engineering Research Center on Technology Transfer)—This survey gathers information and ratings on the accessibility of materials and facilities, quality of materials, moderator effectiveness, discussion content depth, and breadth. https://www.naric.com/?q=en/content/stakeholder-forum-participant-survey